Study title

Well-being of Adults with Cerebral Palsy 2008-2010

Dataset ID Number

FSD2605

Persistent identifier

urn:nbn:fi:fsd:T-FSD2605

Data Type

Qualitative

Authors

• Airaksinen, Tiina (Finnish Association of People with Physical Disabilities. Rehabilitation Unit/CP project)

Abstract

The dataset contains information on Finnish adults with cerebral palsy, collected from different sources during 2008-2010, for the project "Well-being and rehabilitation during the life-cycle of adults with CP". The project was conducted by the Finnish Association of People with Physical Disabilities (FPD).

There were four panel discussions with 10 participants. The participants were adults with CP of differing ages, gender and economic activity. Panel discussions covered the participants' life situations, managing everyday life, services provided for people with CP, disability benefits, rehabilitation, study opportunities, employment, interpersonal relations, physical ability, attitudes of others towards people with CP, and the impact of ageing. The data contain transcriptions of the panel discussions, all other material related to the panel discussions (plans, programmes, assignments given to the participants) as well as diaries written by the participants and e-mail discussions between them.

Another data source was a postal survey containing open-ended questions on rehabilitation services, physical ability, methods of maintaining physical ability, dreams, future plans and fears. There were 54 respondents.

The dataset is only available in Finnish.

Keywords

care of the disabled; cerebral palsy; disabled persons; everyday life; health; identity; psychological well-being; well-being (health)

Topic Classification

• Social sciences (Fields of Science Classification)
• Medical and health sciences (Fields of Science Classification)
• Specific diseases, disorders and medical conditions (CESSDA Topic Classification)
• General health and well-being (CESSDA Topic Classification)
• Social behaviour and attitudes (CESSDA Topic Classification)
• Specific social services: use and availability (CESSDA Topic Classification)

Series

Individual datasets

Distributor

Finnish Social Science Data Archive

Access

The dataset is (B) available for research, teaching and study.

Data Collector

• Airaksinen, Tiina (Finnish Association of People with Physical Disabilities. Rehabilitation Unit/CP project)

Data Producers

• Finnish Association of People with Physical Disabilities
• Finland's Slot Machine Association

Collection Dates

2008 – 2010

Nation

Finland

Geographical Coverage

Finland

Analysis/Observation Unit Type

Individual

Universe

Finnish adults with cerebral palsy

Time Method

Cross-section

Sampling Procedure

Non-probability: Availability

Non-probability: Purposive

The study was advertised in magazines and newspapers. Associations for people with CP, residential care units of the FPD, some rehabilitation centres and certain vocational centres were also notified of the study. 60 people contacted the research project and 49 them were interested in participating in the panel discussions. Out of these, a representative group of 10 people were selected.

Out of the 60 people who contacted the research project, 28 responded to the survey sent to them at the end of 2008.

Collection Mode

Recording

Self-administered questionnaire: Paper

Self-administered writings and/or diaries: E-mail

Research Instrument

Unstructured questionnaire

Participant tasks

Data Files

Data: 52 ODT files and 56 HTML files in Finnish.

Data File Language

The data files of this dataset are available in the following languages: Finnish.

Qualitative data are available in their original language only and are not translated.

Data Version

2.0

Related Datasets

FSD2594 Life Stories of Adults with Cerebral Palsy 2008

Citation Requirement

The data and its creators shall be cited in all publications and presentations for which the data have been used. The bibliographic citation may be in the form suggested by the archive or in the form required by the publication.

Bibliographical Citation

Airaksinen, Tiina (Finnish Association of People with Physical Disabilities): Well-being of Adults with Cerebral Palsy 2008-2010 [dataset]. Version 2.0 (2019-02-06). Finnish Social Science Data Archive [distributor]. https://urn.fi/urn:nbn:fi:fsd:T-FSD2605

Deposit Requirement

Notify FSD of all publications where you have used the data by sending the citation information to user-services.fsd@tuni.fi.

Disclaimer

The original data creators and the archive bear no responsibility for any results or interpretations arising from the reuse of the data.

Related Materials

CP-portaali WWW-sivut. http://www.cp-portaali.fi/ [viitattu: 24.2.2011].

Related Publications

Lantto, Niina (2009). "Toimitaan niin pitkään kuin vaan mahollista..." Ikääntyminen ja vammaisuus lapsuudesta asti vammaisten ihmisten kertomana. Tampere: Tampereen yliopisto. Sosiaalityön pro gradu -tutkielma.

Iskala, Maria & Nieminen, Marianne (2010). Suositukset CP-vammaisten aikuisten oman fyysisen kunnon kohottamiseen ja ylläpitämiseen. Tampere: Tampereen ammattikorkeakoulu. Fysioterapian opinnäytetyö.

Airaksinen, Tiina & Pitkänen, Olli (2010). CP-vammaisena aikuisena Suomessa -koonti ja analyysi 54:n lomakekyselyyn vastanneen henkilön elämäntilanteesta. CP-lehti 2010(4), 31-36.

Takkinen, Elina (2012). Itsenäisyyden ja avun käytön jännitteessä. Laaja-alaisen toimintakyvyn subjektiivinen kokeminen ja hallinnan keinot CP-vammaisella aikuisella kuntoutuksen viitekehyksessä. Helsinki: Helsingin yliopisto. Sosiaalityön pro gradu -tutkielma.

Jaakola, Joni (2017). Terveyden ja sairauden rajapinnalla: Vammaisuuskäsityksen rakentuminen kuntoutuksessa. Turku: Turun yliopisto. Sosiologian pro gradu -tutkielma.