Study title

Parents of Deafblind Children 2007

Dataset ID Number

FSD3064

Persistent identifier

urn:nbn:fi:fsd:T-FSD3064

Data Type

Qualitative

Authors

• Turunen, Leo (Finnish Deafblind Association)
• Kivioja, Arvi (Kuulonäkövammaisten lasten vanhemmat ry)
• Riihimäki, Jouni (Service Foundation for the Deaf)
• Määttä, Paula (University of Jyväskylä. Faculty of Education)

Abstract

The data comprise the accounts of parents of deafblind children about life with a child who has a sensory impairment. The interviews were collected for a book as part of a project conducted by the Federation of Hard of Hearing, funded by Finland's Slot Machine Association. The parents told about, for instance, significant events in their life, the birth of their deafblind child, the child's growth and development, services received, problems faced, and future prospects.

Keywords

blindness; care of the disabled; deafness; disabilities; disabled children; hearing impairments; parental role; parents; sensory impairments; vision impairments

Topic Classification

• Humanities (Fields of Science Classification)
• Medical and health sciences (Fields of Science Classification)
• Specific diseases, disorders and medical conditions (CESSDA Topic Classification)
• Family life and marriage (CESSDA Topic Classification)

Series

Individual datasets

Distributor

Finnish Social Science Data Archive

Access

The dataset is (B) available for research, teaching and study.

Data Collector

• Turunen, Leo (Finnish Deafblind Association)

Time Period Covered

1920 – 2007

Collection Dates

2005 – 2007

Nation

Finland

Geographical Coverage

Finland

Analysis/Observation Unit Type

Individual

Family

Event/Process/Activity

Universe

Parents of deafblind and visually and hearing impaired children

Time Method

Cross-section

Sampling Procedure

Non-probability: Purposive

Families selected for interviews were involved in rehabilitation activities for deafblind people or in the activities of an association for the parents of visually and hearing impaired children. The interviewees were selected to be representative of different periods of time from the beginning of 20th century until the early 21st century. Participation was voluntary, but all of the people who had been invited participated in the interviews.

Collection Mode

Face-to-face interview

Research Instrument

Interview scheme and/or themes

Data Files

The data contain 16 texts in TXT file format (in Finnish). Length of the texts ranges from three to six pages.

Data File Language

The data files of this dataset are available in the following languages: Finnish.

Qualitative data are available in their original language only and are not translated.

Data Version

1.0

Related Datasets

FSD3040 Life of Disabled Persons in Finland 2013-2014

Completeness of Data and Restrictions

The data is based on recorded interviews that the researcher edited into texts for a book.

Citation Requirement

The data and its creators shall be cited in all publications and presentations for which the data have been used. The bibliographic citation may be in the form suggested by the archive or in the form required by the publication.

Bibliographical Citation

Turunen, Leo (Finnish Deafblind Association) & Kivioja, Arvi (Kuulonäkövammaisten lasten vanhemmat ry) & Riihimäki, Jouni (Service Foundation for the Deaf) & Määttä, Paula (University of Jyväskylä): Parents of Deafblind Children 2007 [dataset]. Version 1.0 (2016-02-29). Finnish Social Science Data Archive [distributor]. https://urn.fi/urn:nbn:fi:fsd:T-FSD3064

Deposit Requirement

Notify FSD of all publications where you have used the data by sending the citation information to user-services.fsd@tuni.fi.

Disclaimer

The original data creators and the archive bear no responsibility for any results or interpretations arising from the reuse of the data.

Related Materials

Kuurosokeiden lasten vanhempien kertomuksia (2007). Toim. Turunen, Leo. Tampere: Enostone kustannus.

Related Publications

Kuurosokeiden lasten vanhempien kertomuksia (2007). Toim. Turunen, Leo. Tampere: Enostone kustannus.