Aineiston nimi

Parents of Deafblind Children 2007

Aineistonumero

FSD3064

Pysyvä tunniste

urn:nbn:fi:fsd:T-FSD3064

Aineiston laatu

Kvalitatiivinen aineisto

Tekijät

• Turunen, Leo (Finnish Deafblind Association)
• Kivioja, Arvi (Kuulonäkövammaisten lasten vanhemmat ry)
• Riihimäki, Jouni (Service Foundation for the Deaf)
• Määttä, Paula (University of Jyväskylä. Faculty of Education)

Sisällön kuvaus

The data comprise the accounts of parents of deafblind children about life with a child who has a sensory impairment. The interviews were collected for a book as part of a project conducted by the Federation of Hard of Hearing, funded by Finland's Slot Machine Association. The parents told about, for instance, significant events in their life, the birth of their deafblind child, the child's growth and development, services received, problems faced, and future prospects.

Asiasanat

blindness; care of the disabled; deafness; disabilities; disabled children; hearing impairments; parental role; parents; sensory impairments; vision impairments

Tieteenala/Aihealue

• Humanities (OKM:n tieteenalaluokitus)
• Medical and health sciences (OKM:n tieteenalaluokitus)
• Specific diseases, disorders and medical conditions (CESSDAn aihepiiriluokitus)
• Family life and marriage (CESSDAn aihepiiriluokitus)

Sarja

Individual datasets

Jakelija

Finnish Social Science Data Archive

Käyttöoikeudet

The dataset is (B) available for research, teaching and study.

Kerääjät

• Turunen, Leo (Finnish Deafblind Association)

Ajallinen kattavuus

1920 – 2007

Aineistonkeruun ajankohta

2005 – 2007

Maa

Finland

Kohdealue

Finland

Havainto/aineistoyksikkötyyppi

Individual

Family

Event/Process/Activity

Perusjoukko/otos

Parents of deafblind and visually and hearing impaired children

Tutkimuksen aikaulottuvuus

Cross-section

Havainto/aineistoyksiköiden valinta

Non-probability: Purposive

Families selected for interviews were involved in rehabilitation activities for deafblind people or in the activities of an association for the parents of visually and hearing impaired children. The interviewees were selected to be representative of different periods of time from the beginning of 20th century until the early 21st century. Participation was voluntary, but all of the people who had been invited participated in the interviews.

Aineistonkeruun tekniikka

Face-to-face interview

Keruuväline tai –ohje

Interview scheme and/or themes

Aineiston määrä

The data contain 16 texts in TXT file format (in Finnish). Length of the texts ranges from three to six pages.

Datatiedostojen kieli

Aineisto sisältää datatiedostoja seuraavilla kielillä: suomi.

Kvalitatiiviset aineistot ovat saatavilla vain alkuperäiskielellä, niitä ei käännetä.

Datan versio

1.0

Katso myös

FSD3040 Life of Disabled Persons in Finland 2013-2014

Aineiston käytössä huomioitavaa

The data is based on recorded interviews that the researcher edited into texts for a book.

Viittausvaatimus

The data and its creators shall be cited in all publications and presentations for which the data have been used. The bibliographic citation may be in the form suggested by the archive or in the form required by the publication.

Malliviittaus

Turunen, Leo (Finnish Deafblind Association) & Kivioja, Arvi (Kuulonäkövammaisten lasten vanhemmat ry) & Riihimäki, Jouni (Service Foundation for the Deaf) & Määttä, Paula (University of Jyväskylä): Parents of Deafblind Children 2007 [dataset]. Version 1.0 (2016-02-29). Finnish Social Science Data Archive [distributor]. https://urn.fi/urn:nbn:fi:fsd:T-FSD3064

Julkaisusta tiedottaminen

Notify FSD of all publications where you have used the data by sending the citation information to user-services.fsd@tuni.fi.

Varaumat

The original data creators and the archive bear no responsibility for any results or interpretations arising from the reuse of the data.

Käytön ja kuvailun oheismateriaalit

Kuurosokeiden lasten vanhempien kertomuksia (2007). Toim. Turunen, Leo. Tampere: Enostone kustannus.

Julkaisut aineistosta

Kuurosokeiden lasten vanhempien kertomuksia (2007). Toim. Turunen, Leo. Tampere: Enostone kustannus.