Study title

Disabled and Chronically Ill Young Adults' Notions of Freedom 2018

Dataset ID Number

FSD3359

Persistent identifier

urn:nbn:fi:fsd:T-FSD3359

Data Type

Qualitative

Authors

• Virrankari, Lotta (University of Helsinki. Faculty of Social Sciences)

Abstract

This dataset studied notions that disabled or chronically ill people in Finland had concerning freedom. The study aimed to find out how a possible illness or disability affected feelings and experiences with regard to freedom in life. The data contain 11 transcribed interviews. The study was funded by the Sokra project of the National Institute for Health and Welfare (THL) to coordinate the promotion of social inclusion.

In the data, the interviewees shared how their disability or illness affected their everyday lives. They were asked what sort of meanings the interviewees gave to freedom and whether they considered their lives to have freedom. The interviews also discussed, for instance, whether the disability or illness had set limitations or challenges on the participants' lives, future plans or dreams. In addition, experiences were discussed regarding, for instance, schools, health care services and other institutions, and receiving sufficient support and assistance. Additionally, topics covered services, peer support, feelings of being heard, and friends and relatives' attitudes toward getting a diagnosis.

Background information included date, gender, age and the illness/disability in question (e.g. epilepsy, cerebral palsy). The data were organised into an HTML index at FSD.

The dataset is only available in Finnish.

Keywords

chronic illness; freedom; injuries; physical disabilities; physical mobility; quality of life

Topic Classification

• Social sciences (Fields of Science Classification)
• Medical and health sciences (Fields of Science Classification)
• Minorities (CESSDA Topic Classification)
• General health and well-being (CESSDA Topic Classification)
• Equality, inequality and social exclusion (CESSDA Topic Classification)

Series

Individual datasets

Distributor

Finnish Social Science Data Archive

Access

The dataset is (C) available only for research including master's theses.

Data Collector

• Virrankari, Lotta (University of Helsinki. Faculty of Social Sciences)

Collection Dates

2018-06-26 – 2018-09-05

Nation

Finland

Geographical Coverage

Finland

Analysis/Observation Unit Type

Individual

Universe

Young adults aged 18-29 with a physical disability or somatic long-term illness

Time Method

Cross-section

Sampling Procedure

Non-probability: Availability

The interviewees were reached through associations that were sent an invitation to participate. The invitation was also shared on social media. Participants were given a movie ticket voucher for participating.

Collection Mode

Face-to-face interview

Research Instrument

Interview scheme and/or themes

Data Files

11 TXT files and an HTML index formed from the TXT files.

Data File Language

The data files of this dataset are available in the following languages: Finnish.

Qualitative data are available in their original language only and are not translated.

Data Version

1.0

Completeness of Data and Restrictions

The researcher anonymised the data. Direct identifiers were removed and interviewees' names were changed to aliases. Interviewees' ages were categorised as well as municipality of residence (urban, semi-urban, rural). Educational background was coarsened and occupation was removed. Additionally, the researcher removed specific descriptions of workplaces and sensitive information. During archiving, some further indirect identifiers were removed. Anonymisations done at FSD were marked with [[double square brackets]].

Citation Requirement

The data and its creators shall be cited in all publications and presentations for which the data have been used. The bibliographic citation may be in the form suggested by the archive or in the form required by the publication.

Bibliographical Citation

Virrankari, Lotta (University of Helsinki): Disabled and Chronically Ill Young Adults' Notions of Freedom 2018 [dataset]. Version 1.0 (2019-07-03). Finnish Social Science Data Archive [distributor]. https://urn.fi/urn:nbn:fi:fsd:T-FSD3359

Deposit Requirement

Notify FSD of all publications where you have used the data by sending the citation information to user-services.fsd@tuni.fi.

Disclaimer

The original data creators and the archive bear no responsibility for any results or interpretations arising from the reuse of the data.

Related Publications

Virrankari, Lotta (2019) Vapaus ois se, et mä pystyisin tekemään, mitä mä haluaisin - Pitkäaikaissairaiden ja fyysisesti vammaisten nuorten aikuisten vapauden kokemukset osana toimintavalmiuksia. Yhteiskuntapolitiikan pro gradu -tutkielma.

Tenkanen, Karoliina (2021) Pitkäaikaissairaiden ja fyysisesti vammaisten nuorten aikuisten näkemyksiä toimijuudesta. Sosiaalityön Pro gradu -tutkielma. Yhteiskuntatieteiden laitos, Itä-Suomen yliopisto.

Saunavaara, Sanni (2022) "Paras asia elämässä mikä tukee elämää on yhteiskunta, mutta suurin asia mikä rajottaa sun elämää on yhteiskunta": Pitkäaikaissairaiden ja fyysisesti vammaisten henkilöiden osallisuus. Tampereen yliopisto. Yhteiskuntatieteiden tiedekunta. Sosiaalityön pro gradu -tutkielma. https://urn.fi/URN:NBN:fi:tuni-202301181549

Hekkala, Henna (2023) Itsemääräämisen edellytykset ja esteet vammaisen nuoren itsenäistyessä. Sosiaalityön Pro gradu -tutkielma. Yhteiskuntatieteiden tiedekunta. Lapin yliopisto.

Tolvanen, Heidi (2024). Yhteiskunnan ja yhteisöjen merkitys pitkäaikaissairaiden ja fyysisesti vammaisten nuorten aikuisten hyvinvoinnissa. Sosiaalityön Pro gradu -tutkielma. Yhteiskuntatieteiden laitos, Itä-Suomen yliopisto.

Tiainen, Katja (2024). Toimijuuden rakentuminen fyysisesti vammaisten ja pitkäaikaissairaiden nuorten aikuisten elämässä. Sosiaalityön pro gradu -tutkielma. Yhteiskuntatieteiden tiedekunta. Lapin yliopisto.