Study title

Life Stories of Disabled Artists 2018

Dataset ID Number

FSD3374

Persistent identifier

urn:nbn:fi:fsd:T-FSD3374

Data Type

Qualitative

Authors

• Salonlahti, Outi (University of Jyväskylä. Faculty of Humanities and Social Sciences)

Abstract

The dataset consists of eight written responses and two interviews on disabled and Deaf artists' experiences of their position and status in Finnish society and art world. The participants worked widely in different areas of art, such as theatre, music and visual arts. The data were collected as part of research that aimed to explore the opportunities and challenges experienced by disabled artists in their career. Six of the written responses and the two interviews are in Finnish, and the two remaining written responses are in Swedish.

In the written responses and interviews, the respondents were asked to recount their life stories, concentrating especially on the beginning of their artist career and on working as a disabled artist. The respondents' possible arts education, work opportunities in the art field and financial circumstances as a disabled artist were examined. Some questions also focused on the importance of social support both during the respondents' journey to become an artist and while working as a professional artist. The respondents were asked to describe their relationship with the disability movement that stands up for the rights of disabled persons, as well as how society and the art world have treated them as professionals in the field.

Background information on the participants is available catalogued in a CSV file. The background information cannot be connected to individual participants. The background information includes, for example, the respondent's age, gender, education and questions on being an artist and disabled.

Participation in the study was made as accessible as possible during data collection. The files included in the dataset are available in an accessible ODT format in Finnish and Swedish, and the invitation for written responses is available in video file format.

The dataset is only available in the original languages (Finnish and Swedish).

Keywords

arts; career; disabilities; disability discrimination; disabled persons; economic, social and cultural rights; life cycle; social support

Topic Classification

• Social sciences (Fields of Science Classification)
• Humanities (Fields of Science Classification)
• Equality, inequality and social exclusion (CESSDA Topic Classification)
• Minorities (CESSDA Topic Classification)
• Cultural activities and participation (CESSDA Topic Classification)
• Cultural and national identity (CESSDA Topic Classification)

Series

Individual datasets

Distributor

Finnish Social Science Data Archive

Access

The dataset is (C) available only for research including master's theses.

Data Collector

• Salonlahti, Outi (University of Jyväskylä. Faculty of Humanities and Social Sciences)

Collection Dates

2018-05-09 – 2018-09-09

Nation

Finland

Geographical Coverage

Finland

Analysis/Observation Unit Type

Individual

Universe

Disabled and Deaf artists residing in Finland

Time Method

Cross-section

Sampling Procedure

Non-probability: Availability

Non-probability: Purposive

The invitation to participate in the research was shared with disability associations, disability culture and arts festivals, organisers and networks of special art activities, information centres for the arts, and trade unions for art and culture. Additionally, the invitation was shared via the researcher's social media and published in the Leija and Tukilinja magazines. Some artists who had publicly available contact information were contacted directly.

Collection Mode

Face-to-face interview

Self-administered questionnaire: Web-based (CAWI)

Self-administered writings and/or diaries: Web-based

Self-administered writings and/or diaries: E-mail

Research Instrument

Interview scheme and/or themes

Data collection guidelines: Self-administered writings guide

Structured questionnaire

Data Files

Ten files in ODT format and background information in a CSV file.

Data File Language

The data files of this dataset are available in the following languages: Finnish.

Qualitative data are available in their original language only and are not translated.

Data Version

1.0

Completeness of Data and Restrictions

The artists were asked to write their background information and life stories in two separate online forms. The online form was not a practical way of responding for some of the participants, and they sent their responses via email. Additionally, two interviews were conducted where the researcher wrote down the participants' background information on paper. Data collection documents in English were not archived at FSD, because the dataset is only available in Finnish and Swedish.

The researcher anonymised the data by removing or changing identifiers concerning the participants or any third persons. For example, dates and country names that appear in the data in [[double square brackets]] were anonymised. At FSD, the anonymisation was specified by removing, for example, municipality names and other detailed information, such as distinctive subgenres of art. Changes made at FSD were marked with the less-than and greater-than signs.

Two participants did not consent to the archiving of their responses and one participant sent only their background information to the researcher. These three responses are not included in the archived dataset.

Citation Requirement

The data and its creators shall be cited in all publications and presentations for which the data have been used. The bibliographic citation may be in the form suggested by the archive or in the form required by the publication.

Bibliographical Citation

Salonlahti, Outi (University of Jyväskylä): Life Stories of Disabled Artists 2018 [dataset]. Version 1.0 (2020-06-25). Finnish Social Science Data Archive [distributor]. https://urn.fi/urn:nbn:fi:fsd:T-FSD3374

Deposit Requirement

Notify FSD of all publications where you have used the data by sending the citation information to user-services.fsd@tuni.fi.

Disclaimer

The original data creators and the archive bear no responsibility for any results or interpretations arising from the reuse of the data.

Related Publications

Salonlahti, Outi. 2019. 'On aina oltava 200 % parempi'. Vammaisten ja kuurojen taiteilijoiden toimintamahdollisuudet ja taiteilijapolut. Yhteiskuntapolitiikka / Kulttuuripolitiikan maisteriohjelma. Maisterintutkielma. Yhteiskuntatieteiden ja filosofian laitos. Humanistis-yhteiskuntatieteellinen tiedekunta. Jyväskylän yliopisto. http://urn.fi/URN:NBN:fi:jyu-201910114389

Salonlahti, Outi (2021). "Twists and turns - The careers of Finnish disabled and Deaf artists." Nordisk kulturpolitisk tidsskrift / Nordic Journal of Cultural Policy 01 / 2021 (Volume 24), s. 37-60. https://doi.org/10.18261/issn.2000-8325-2021-01-04.