Study title

Finnish Experiences of Disability and Aging 2021

Dataset ID Number

FSD3617

Persistent identifier

urn:nbn:fi:fsd:T-FSD3617

Data Type

Qualitative

Authors

• Era, Salla (University of Jyväskylä. Centre of Excellence in Research on Ageing and Care)

Abstract

The dataset consists of self-administered written texts written by elderly people who have a disability. The writing invitation was aimed at individuals who are ageing with a disability and individuals with age-related disabilities or handicaps.

In the writing guidelines, the participants were presented with questions that they could use to help guide their writing. The questions prompted the participants to describe their experience of ageing with a disability or the experience of living with age-related disabilities or handicaps. The participants were asked whether they had received adequate support and assistance to manage the challenges posed by their disability, and whether they felt that they were treated differently now that they were elderly or as a result of developing age-related disabilities. Additionally, the participants could write about how disability had impacted their identity, everyday life or hobbies.

Background information included the participant's gender, age group, the disability the participant had, and whether the participant's municipality of residence had deemed them eligible for services for the disabled or the elderly.

The dataset is only available in Finnish.

Keywords

ageing; care of dependants; care of the disabled; care of the elderly; disabilities; disabled persons; elderly

Topic Classification

• Social sciences (Fields of Science Classification)
• Elderly (CESSDA Topic Classification)
• General health and well-being (CESSDA Topic Classification)

Series

Individual datasets

Distributor

Finnish Social Science Data Archive

Access

The dataset is (B) available for research, teaching and study.

Data Collector

• Era, Salla (University of Jyväskylä. Centre of Excellence in Research on Ageing and Care)

Collection Dates

2021-10-19 – 2021-12-31

Nation

Finland

Geographical Coverage

Finland

Analysis/Observation Unit Type

Individual

Universe

Elderly individuals with a disability

Time Method

Cross-section

Sampling Procedure

Non-probability: Availability

The writing invitation was shared on the University of Jyväskylä website, Facebook, and Twitter. Various associations for the disabled and the elderly were also notified about the study by email.

Collection Mode

Self-administered writings and/or diaries: Web-based (Penna textual data collection tool)

Research Instrument

Data collection guidelines: Self-administered writings guide

Data Files

20 files in TXT format. Additionally, the data were organised into an easy to use HTML version and a CSV version.

Data File Language

The data files of this dataset are available in the following languages: Finnish.

Qualitative data are available in their original language only and are not translated.

Data Version

1.0

Completeness of Data and Restrictions

The data were collected for the purposes of academic or literary expression. Some personal data essential for the reuse of the data, such as indirect identifiers referring to the participant, were left in the archived data on purpose. During archiving at FSD, direct and strong indirect identifiers referring to the participants were removed (e.g. personal names, workplace names). Additionally, all direct and indirect identifiers referring to third parties were removed. To prevent identification, one response was removed completely because it was an article previously published by the participant and available online.

One text was removed from the data archived at FSD because the participant did not consent to the archiving of their text. Two responses were removed from the data: one response contained only the participant's background information and the other one was a duplicate of a response that had been submitted twice.

Citation Requirement

The data and its creators shall be cited in all publications and presentations for which the data have been used. The bibliographic citation may be in the form suggested by the archive or in the form required by the publication.

Bibliographical Citation

Era, Salla (University of Jyväskylä): Finnish Experiences of Disability and Aging 2021 [dataset]. Version 1.0 (2022-02-24). Finnish Social Science Data Archive [distributor]. https://urn.fi/urn:nbn:fi:fsd:T-FSD3617

Deposit Requirement

Notify FSD of all publications where you have used the data by sending the citation information to user-services.fsd@tuni.fi.

Special Terms and Conditions for Access

The data may contain indirect identifiers. When publishing quotations from the data, users need to consider very carefully in each specific case what information needs to be removed or altered according to research ethical guidelines.

Disclaimer

The original data creators and the archive bear no responsibility for any results or interpretations arising from the reuse of the data.

FSD has not been informed of any publications related to the data.