Aineiston nimi

Finnish Experiences of Disability and Aging 2021

Aineistonumero

FSD3617

Pysyvä tunniste

urn:nbn:fi:fsd:T-FSD3617

Aineiston laatu

Kvalitatiivinen aineisto

Tekijät

• Era, Salla (University of Jyväskylä. Centre of Excellence in Research on Ageing and Care)

Sisällön kuvaus

The dataset consists of self-administered written texts written by elderly people who have a disability. The writing invitation was aimed at individuals who are ageing with a disability and individuals with age-related disabilities or handicaps.

In the writing guidelines, the participants were presented with questions that they could use to help guide their writing. The questions prompted the participants to describe their experience of ageing with a disability or the experience of living with age-related disabilities or handicaps. The participants were asked whether they had received adequate support and assistance to manage the challenges posed by their disability, and whether they felt that they were treated differently now that they were elderly or as a result of developing age-related disabilities. Additionally, the participants could write about how disability had impacted their identity, everyday life or hobbies.

Background information included the participant's gender, age group, the disability the participant had, and whether the participant's municipality of residence had deemed them eligible for services for the disabled or the elderly.

The dataset is only available in Finnish.

Asiasanat

ageing; care of dependants; care of the disabled; care of the elderly; disabilities; disabled persons; elderly

Tieteenala/Aihealue

• Social sciences (OKM:n tieteenalaluokitus)
• Elderly (CESSDAn aihepiiriluokitus)
• General health and well-being (CESSDAn aihepiiriluokitus)

Sarja

Individual datasets

Jakelija

Finnish Social Science Data Archive

Käyttöoikeudet

The dataset is (B) available for research, teaching and study.

Kerääjät

• Era, Salla (University of Jyväskylä. Centre of Excellence in Research on Ageing and Care)

Aineistonkeruun ajankohta

2021-10-19 – 2021-12-31

Maa

Finland

Kohdealue

Finland

Havainto/aineistoyksikkötyyppi

Individual

Perusjoukko/otos

Elderly individuals with a disability

Tutkimuksen aikaulottuvuus

Cross-section

Havainto/aineistoyksiköiden valinta

Non-probability: Availability

The writing invitation was shared on the University of Jyväskylä website, Facebook, and Twitter. Various associations for the disabled and the elderly were also notified about the study by email.

Aineistonkeruun tekniikka

Self-administered writings and/or diaries: Web-based (Penna textual data collection tool)

Keruuväline tai –ohje

Data collection guidelines: Self-administered writings guide

Aineiston määrä

20 files in TXT format. Additionally, the data were organised into an easy to use HTML version and a CSV version.

Datatiedostojen kieli

Aineisto sisältää datatiedostoja seuraavilla kielillä: suomi.

Kvalitatiiviset aineistot ovat saatavilla vain alkuperäiskielellä, niitä ei käännetä.

Datan versio

1.0

Aineiston käytössä huomioitavaa

The data were collected for the purposes of academic or literary expression. Some personal data essential for the reuse of the data, such as indirect identifiers referring to the participant, were left in the archived data on purpose. During archiving at FSD, direct and strong indirect identifiers referring to the participants were removed (e.g. personal names, workplace names). Additionally, all direct and indirect identifiers referring to third parties were removed. To prevent identification, one response was removed completely because it was an article previously published by the participant and available online.

One text was removed from the data archived at FSD because the participant did not consent to the archiving of their text. Two responses were removed from the data: one response contained only the participant's background information and the other one was a duplicate of a response that had been submitted twice.

Viittausvaatimus

The data and its creators shall be cited in all publications and presentations for which the data have been used. The bibliographic citation may be in the form suggested by the archive or in the form required by the publication.

Malliviittaus

Era, Salla (University of Jyväskylä): Finnish Experiences of Disability and Aging 2021 [dataset]. Version 1.0 (2022-02-24). Finnish Social Science Data Archive [distributor]. https://urn.fi/urn:nbn:fi:fsd:T-FSD3617

Julkaisusta tiedottaminen

Notify FSD of all publications where you have used the data by sending the citation information to user-services.fsd@tuni.fi.

Erityisehdot

The data may contain indirect identifiers. When publishing quotations from the data, users need to consider very carefully in each specific case what information needs to be removed or altered according to research ethical guidelines.

Varaumat

The original data creators and the archive bear no responsibility for any results or interpretations arising from the reuse of the data.

Tietoarkiston tiedossa ei ole julkaisuja, joissa aineistoa olisi käytetty.