<?xml version="1.0" encoding="utf-8"?>
<codeBook xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" xmlns="ddi:codebook:2_5" version="2.5" xsi:schemaLocation="ddi:codebook:2_5 http://www.ddialliance.org/Specification/DDI-Codebook/2.5/XMLSchema/codebook.xsd" xml:lang="en">
  <docDscr>
    <citation>
      <titlStmt>
        <titl>DDI description: Cancer Patients' Experiences of Psychosocial Support 2024</titl>
        <parTitl xml:lang="fi">DDI-kuvailu: Syöpään sairastuneiden kokemuksia psykososiaalisesta tuesta 2024</parTitl>
        <IDNo agency="FSD">3903</IDNo>
      </titlStmt>
      <prodStmt>
        <producer abbr="FSD">Finnish Social Science Data Archive</producer>
        <copyright>Finnish Social Science Data Archive</copyright>
        <prodPlac>Finnish Social Science Data Archive</prodPlac>
      </prodStmt>
      <verStmt>
        <version date="2024-11-12" type="mef_eng">1.0.0</version>
      </verStmt>
      <biblCit>Cancer Patients' Experiences of Psychosocial Support 2024 [metadata]. Metadata version 1.0.0 (2024-11-12). Finnish Social Science Data Archive [producer and distributor]. DOI: https://doi.org/10.60686/t-fsd3903; URN: https://urn.fi/urn:nbn:fi:fsd:T-FSD3903</biblCit>
      <holdings location="Finnish Social Science Data Archive FSD" URI="https://urn.fi/urn:nbn:fi:fsd:T-FSD3903" />
    </citation>
    <notes xml:lang="fi">FSD:n aineistokuvailut (FSD metadata records), joiden tekijä on Suomen yhteiskuntatieteellinen tietoarkisto (Finnish Social Science Data Archive), on lisensoitu Creative Commons 1.0 Yleismaailmallinen (CC0 1.0) -lisenssillä.
      <ExtLink URI="https://creativecommons.org/publicdomain/zero/1.0/deed.fi" />
    </notes>
    <notes xml:lang="en">FSD:n aineistokuvailut (FSD metadata records) by Suomen yhteiskuntatieteellinen tietoarkisto (Finnish Social Science Data Archive) are licensed under a Creative Commons 1.0 Universal (CC0 1.0) license.
      <ExtLink URI="https://creativecommons.org/publicdomain/zero/1.0/deed.en" />
    </notes>
    <notes xml:lang="sv">FSD:n aineistokuvailut (FSD metadata records) av Finlands samhällsvetenskapliga dataarkiv (Finnish Social Science Data Archive) är licensierade under en Creative Commons 1.0 Universiell (CC0 1.0) licens.
      <ExtLink URI="https://creativecommons.org/publicdomain/zero/1.0/deed.sv" />
    </notes>
  </docDscr>
  <stdyDscr>
    <citation>
      <titlStmt>
        <titl>Cancer Patients' Experiences of Psychosocial Support 2024</titl>
        <parTitl xml:lang="fi">Syöpään sairastuneiden kokemuksia psykososiaalisesta tuesta 2024</parTitl>
        <IDNo agency="FSD">3903</IDNo>
        <IDNo agency="URN">urn:nbn:fi:fsd:T-FSD3903</IDNo>
        <IDNo agency="DOI">10.60686/t-fsd3903</IDNo>
      </titlStmt>
      <rspStmt>
        <AuthEnty affiliation="University of Jyväskylä">Vuolle, Terhi</AuthEnty>
      </rspStmt>
      <prodStmt>
        <copyright>In accordance with the agreement between FSD and the depositor.</copyright>
      </prodStmt>
      <distStmt>
        <distrbtr abbr="FSD" URI="https://www.fsd.tuni.fi/">Finnish Social Science Data Archive</distrbtr>
        <distDate date="2025-03-03" />
      </distStmt>
      <serStmt ID="S8" URI="https://services.fsd.tuni.fi/catalogue/series/8?lang=en">
        <serName>Individual datasets</serName>
        <serInfo>
          <p>Individual datasets that do not belong to any series.</p>
        </serInfo>
      </serStmt>
      <verStmt>
        <version date="2024-11-12" type="main_data">1.0</version>
      </verStmt>
      <biblCit>Vuolle, Terhi (University of Jyväskylä): Cancer Patients' Experiences of Psychosocial Support 2024 [dataset]. Data version 1.0 (2024-11-12). Finnish Social Science Data Archive [distributor]. DOI: https://doi.org/10.60686/t-fsd3903; URN: https://urn.fi/urn:nbn:fi:fsd:T-FSD3903</biblCit>
      <holdings location="Finnish Social Science Data Archive FSD" URI="https://urn.fi/urn:nbn:fi:fsd:T-FSD3903" />
    </citation>
    <stdyInfo>
      <subject>
        <keyword vocab="ELSST" vocabURI="https://elsst.cessda.eu/id">diseases</keyword>
        <keyword vocab="ELSST" vocabURI="https://elsst.cessda.eu/id">cancer</keyword>
        <keyword vocab="ELSST" vocabURI="https://elsst.cessda.eu/id">medical history</keyword>
        <keyword vocab="ELSST" vocabURI="https://elsst.cessda.eu/id">rehabilitation (medical)</keyword>
        <topcClas vocab="OKM" vocabURI="http://www.yso.fi/onto/okm-tieteenala/conceptscheme">Social sciences</topcClas>
        <topcClas vocab="CESSDA Topic Classification" vocabURI="https://vocabularies.cessda.eu/urn/urn:ddi:int.cessda.cv:TopicClassification:4.2.3">Specific diseases, disorders and medical conditions</topcClas>
        <topcClas vocab="CESSDA Topic Classification" vocabURI="https://vocabularies.cessda.eu/urn/urn:ddi:int.cessda.cv:TopicClassification:4.2.3">Medication and treatment</topcClas>
      </subject>
      <abstract>
        <p>The data consists of writings in which cancer patients and cancer survivors write about their experiences of psychosocial support. The data was originally collected for a Master's thesis on the experiences and needs of cancer survivors for psychosocial support.</p>
        <p>The writing invitation aimed to collect experiences related to cancer, rehabilitation, psychosocial support received, and support needs and expectations. The writing invitation provided a number of supporting questions which the respondent could use to assist in the writing process. These questions asked the respondent to describe, among other things, his/her perception of psychosocial support and its impact on his/her life at different stages of his/her life. The respondent was also given the opportunity to write about what kind of support has been important to them at different stages of their illness, how it has affected them and from whom they have received support. The respondent was also asked to write about, for example, what factors have been barriers or challenges in seeking support.</p>
        <p>The background information includes gender and age group. The data were organised into an easy to use HTML version at FSD.</p>
      </abstract>
      <sumDscr>
        <collDate event="start" date="2024-06-05" />
        <collDate event="end" date="2024-08-15" />
        <nation abbr="FI">Finland</nation>
        <geogCover>Finland</geogCover>
        <anlyUnit>Individual
          <concept vocab="DDI Analysis Unit" vocabURI="https://vocabularies.cessda.eu/urn/urn:ddi:int.ddi.cv:AnalysisUnit:2.1.3">Individual</concept>
        </anlyUnit>
        <universe clusion="I">People who have or have had cancer</universe>
        <dataKind>Qualitative</dataKind>
      </sumDscr>
    </stdyInfo>
    <method>
      <dataColl>
        <timeMeth>Cross-section
          <concept vocab="DDI Time Method" vocabURI="https://vocabularies.cessda.eu/urn/urn:ddi:int.ddi.cv:TimeMethod:1.2.3">CrossSection</concept>
        </timeMeth>
        <dataCollector affiliation="University of Jyväskylä">Vuolle, Terhi</dataCollector>
        <sampProc>Non-probability: Availability
          <concept vocab="DDI Sampling Procedure" vocabURI="https://vocabularies.cessda.eu/urn/urn:ddi:int.ddi.cv:SamplingProcedure:2.0.2">Nonprobability.Availability</concept>
        </sampProc>
        <sampProc>
          <p>The writing invitation was shared in cooperation with the Cancer Association Pirkanmaa on their website and social media accounts (Facebook and Instagram). In addition, the Association of Cancer Patients in Finland, Cancer Society of Finland, Europan Donna Finland ry, the Finnish Colorectal Cancer Association (Colores), the Southern Finland Cancer Association and Siskola, among others, have published the writing invitation on their social media pages.</p>
        </sampProc>
        <collMode>Self-administered writings and/or diaries: Web-based
          <concept vocab="DDI Mode of Collection" vocabURI="https://vocabularies.cessda.eu/urn/urn:ddi:int.ddi.cv:ModeOfCollection:5.0.1">SelfAdministeredWritingsAndDiaries.WebBased</concept>
          <txt>Penna textual data collection tool</txt>
        </collMode>
        <resInstru>Data collection guidelines: Self-administered writings guide
          <concept vocab="DDI Type of Instrument" vocabURI="https://vocabularies.cessda.eu/urn/urn:ddi:int.ddi.cv:TypeOfInstrument:1.1.2">DataCollectionGuidelines.SelfAdministeredWritingsGuide</concept>
        </resInstru>
      </dataColl>
      <stdyClas type="A">Detailed and specific data description in Finnish and English. The data are checked and processed in detail. If necessary, the data are anonymised.</stdyClas>
    </method>
    <dataAccs>
      <setAvail>
        <accsPlac URI="https://www.fsd.tuni.fi/">Finnish Social Science Data Archive</accsPlac>
        <collSize>15 writings in txt format. Additionally, the data were organised into an easy to use HTML version and a CSV version.</collSize>
        <complete>16 responses were received to the writing call, and 15 of them were submitted with the author's permission for archiving.</complete>
      </setAvail>
      <useStmt>
        <restrctn>The dataset is (C) available only for research including master's theses.</restrctn>
        <citReq>The data and its creators shall be cited in all publications and presentations for which the data have been used. The bibliographic citation may be in the form suggested by the archive or in the form required by the publication.</citReq>
        <deposReq>Notify FSD of all publications where you have used the data by sending the citation information to user-services.fsd@tuni.fi.</deposReq>
        <disclaimer>The original data creators and the archive bear no responsibility for any results or interpretations arising from the reuse of the data.</disclaimer>
      </useStmt>
      <notes type="TIIPII">For example, names, places of residence and Facebook group names were removed from the archived writings.</notes>
    </dataAccs>
    <othrStdyMat>
      <relPubl xml:lang="fi">Vuolle, Terhi (2024) ”Mitä onkaan psykososiaalinen tuki?” : fenomenologis-hermeneuttinen tutkimus syöpään sairastuneiden psykososiaalisen tuen kokemuksista. Sosiaalityön pro gradu -tutkielma, Jyväskylän yliopisto.
        <citation>
          <titlStmt>
            <titl>”Mitä onkaan psykososiaalinen tuki?” : fenomenologis-hermeneuttinen tutkimus syöpään sairastuneiden psykososiaalisen tuen kokemuksista</titl>
            <IDNo agency="URN">URN:NBN:fi:jyu-202411297532</IDNo>
          </titlStmt>
          <distStmt>
            <distDate date="2024" />
          </distStmt>
          <holdings URI="http://www.urn.fi/URN:NBN:fi:jyu-202411297532" />
        </citation>
      </relPubl>
    </othrStdyMat>
  </stdyDscr>
</codeBook>
