DDI description: Writings of People with Polycystic Ovary Syndrome (PCOS) 2025 DDI-kuvailu: Munasarjojen monirakkulaoireyhtymää (PCOS) sairastavien kirjoituksia 2025 4042 Finnish Social Science Data Archive Finnish Social Science Data Archive Finnish Social Science Data Archive 1.0.0 Writings of People with Polycystic Ovary Syndrome (PCOS) 2025 [metadata]. Metadata version 1.0.0 (2026-02-11). Finnish Social Science Data Archive [producer and distributor]. DOI: https://doi.org/10.60686/t-fsd4042; URN: https://urn.fi/urn:nbn:fi:fsd:T-FSD4042 FSD:n aineistokuvailut (FSD metadata records), joiden tekijä on Suomen yhteiskuntatieteellinen tietoarkisto (Finnish Social Science Data Archive), on lisensoitu Creative Commons 1.0 Yleismaailmallinen (CC0 1.0) -lisenssillä. FSD:n aineistokuvailut (FSD metadata records) by Suomen yhteiskuntatieteellinen tietoarkisto (Finnish Social Science Data Archive) are licensed under a Creative Commons 1.0 Universal (CC0 1.0) license. FSD:n aineistokuvailut (FSD metadata records) av Finlands samhällsvetenskapliga dataarkiv (Finnish Social Science Data Archive) är licensierade under en Creative Commons 1.0 Universiell (CC0 1.0) licens. Writings of People with Polycystic Ovary Syndrome (PCOS) 2025 Munasarjojen monirakkulaoireyhtymää (PCOS) sairastavien kirjoituksia 2025 4042 urn:nbn:fi:fsd:T-FSD4042 10.60686/t-fsd4042 Koskela, Riikka In accordance with the agreement between FSD and the depositor. Finnish Social Science Data Archive Individual datasets

Individual datasets that do not belong to any series.

 1.0 Koskela, Riikka (University of Turku): Writings of People with Polycystic Ovary Syndrome (PCOS) 2025 [dataset]. Data version 1.0 (2026-02-11). Finnish Social Science Data Archive [distributor]. DOI: https://doi.org/10.60686/t-fsd4042; URN: https://urn.fi/urn:nbn:fi:fsd:T-FSD4042 femininity women patients diseases gynaecology women's health medical care Social sciences Specific diseases, disorders and medical conditions Reproductive health

The data consists of writings in which the respondents describe their experiences related to polycystic ovary syndrome (PCOS). The data was originally collected for a master's thesis that examined the experiences of women living with PCOS regarding the stigma associated with womanhood.

The invitation to write asked participants to share their personal experiences related to the condition and to reflect on the situations in which they had experienced stigma directed at women due to their PCOS symptoms. Respondents were also asked to consider what had caused the stigma in that particular situation, how they reacted to it, and how they would have liked others to react. People were welcome to respond even if they did not have a PCOS diagnosis or if their gender identity was other than female. The call for submissions also provided some guiding questions to assist with the responses.

As background information, respondents were asked about their age, gender, and whether they knew they had PCOS in the situation described in the writing.

 Finland Finland Individual Individual People with experience of polycystic ovary syndrome (PCOS) Qualitative Cross-section CrossSection Koskela, Riikka Non-probability: Availability Nonprobability.Availability Self-administered writings and/or diaries: Web-based SelfAdministeredWritingsAndDiaries.WebBased Penna textual data collection tool Data collection guidelines: Self-administered writings guide DataCollectionGuidelines.SelfAdministeredWritingsGuide Detailed and specific data description in Finnish and English. The data are checked and processed in detail. If necessary, the data are anonymised. Finnish Social Science Data Archive 37 writings in txt format. Additionally, the data were organised into an easy to use HTML version and a CSV version. A total of 39 writings were collected, of which 37 were approved by the authors for archiving. The dataset is (B) available for research, teaching and study. The data and its creators shall be cited in all publications and presentations for which the data have been used. The bibliographic citation may be in the form suggested by the archive or in the form required by the publication. Notify FSD of all publications where you have used the data by sending the citation information to user-services.fsd@tuni.fi. The original data creators and the archive bear no responsibility for any results or interpretations arising from the reuse of the data. In FSD, information about place of residence was removed from the archived writings. Koskela, Riikka (2025) ”En sovi siihen kuvaan naisesta, jota yhteiskunta odottaa” : Mikrotunnustuksellinen analyysi munasarjojen monirakkulaoireyhtymää sairastavien stigmakokemuksista. Sosiologian pro gradu -tutkielma, Turun yliopisto. ”En sovi siihen kuvaan naisesta, jota yhteiskunta odottaa” : Mikrotunnustuksellinen analyysi munasarjojen monirakkulaoireyhtymää sairastavien stigmakokemuksista. URN:NBN:fi-fe2026013010067