FSD2605 Well-being of Adults with Cerebral Palsy 2008-2010

The dataset is (B) available for research, teaching and study.

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Study description in other languages

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Authors

  • Airaksinen, Tiina (Finnish Association of People with Physical Disabilities. Rehabilitation Unit/CP project)

Keywords

care of the disabled, cerebral palsy, disabled persons, everyday life, health, identity, psychological well-being, well-being (health)

Abstract

The dataset contains information on Finnish adults with cerebral palsy, collected from different sources during 2008-2010, for the project "Well-being and rehabilitation during the life-cycle of adults with CP". The project was conducted by the Finnish Association of People with Physical Disabilities (FPD).

There were four panel discussions with 10 participants. The participants were adults with CP of differing ages, gender and economic activity. Panel discussions covered the participants' life situations, managing everyday life, services provided for people with CP, disability benefits, rehabilitation, study opportunities, employment, interpersonal relations, physical ability, attitudes of others towards people with CP, and the impact of ageing. The data contain transcriptions of the panel discussions, all other material related to the panel discussions (plans, programmes, assignments given to the participants) as well as diaries written by the participants and e-mail discussions between them.

Another data source was a postal survey containing open-ended questions on rehabilitation services, physical ability, methods of maintaining physical ability, dreams, future plans and fears. There were 54 respondents.

The dataset is only available in Finnish.

Study description in machine readable DDI 2.0 format

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Metadata record is licensed under a Creative Commons Attribution 4.0 International license.