FSD3064 Parents of Deafblind Children 2007

The dataset is (B) available for research, teaching and study.

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  • Turunen, Leo (Finnish Deafblind Association)
  • Kivioja, Arvi (Kuulonäkövammaisten lasten vanhemmat ry)
  • Riihimäki, Jouni (Service Foundation for the Deaf)
  • Määttä, Paula (University of Jyväskylä. Faculty of Education)


blindness, care of the disabled, deafness, disabilities, disabled children, hearing impairments, parental role, parents, sensory impairments, vision impairments


The data comprise the accounts of parents of deafblind children about life with a child who has a sensory impairment. The interviews were collected for a book as part of a project conducted by the Federation of Hard of Hearing, funded by Finland's Slot Machine Association. The parents told about, for instance, significant events in their life, the birth of their deafblind child, the child's growth and development, services received, problems faced, and future prospects.

Study description in machine readable DDI 2.0 format

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