Study title

Experiences of Life with Adult Incontinence Pads 2020-2021

Dataset ID Number

FSD3619

Persistent identifiers

https://urn.fi/urn:nbn:fi:fsd:T-FSD3619
https://doi.org/10.60686/t-fsd3619

Data Type

Qualitative

Authors

• Vaittinen, Tiina (Tampere University)

Abstract

The data consists of writings in which respondents describe their experiences of using incontinence guards, or adult incontinence pads. Respondents' experiences of using incontinence guards relate either to their own use or to helping others.

In the writing call respondents were asked to write an autobiographical story or stories about their experiences of using adult incontinenc pads. The respondents were asked to write a story about their life with adult pads from the perspective they wanted. Respondents could write a story about one event, one day, or describe a longer period of time.

Respondents were given a number of help questions to facilitate their writing. These included questions about the challenges of using adult incontinence pads and any innovative solutions the respondent may have developed to make everyday life with pads smoother. In addition, the help questions asked about the possible impact of adult incontinence pad use on work, hobbies, relationships or personal finances, for example. It was also asked whether the respondents felt they had received enough support and information about incontinence management and related treatments.

The background information asked included age, gender. The data were organised into an easy to use HTML version at FSD.

Keywords

diseases; enureses; faecal incontinence; incontinence; urinary incontinence

Topic Classification

• Social sciences (Fields of Science Classification)
• Medical and health sciences (Fields of Science Classification)
• Specific diseases, disorders and medical conditions (CESSDA Topic Classification)
• Medication and treatment (CESSDA Topic Classification)

Series

Individual datasets

Distributor

Finnish Social Science Data Archive

Access

The dataset is (C) available only for research including master's theses.

Data Collector

• Vaittinen, Tiina (Tampere University)

Funders

• Research Council of Finland|Academy of Finland (321972)
• Koneen Säätiö

Collection Dates

2020-09-22 – 2021-12-31

Nation

Finland

Geographical Coverage

Finland

Analysis/Observation Unit Type

Individual

Universe

All people aged 18 and over who either wear adult incontinence pads themselves, or assist others to do so.

Time Method

Cross-section

Sampling Procedure

Non-probability: Availability

The writign call was publicised on the research project's website (www.vaippahanke.fi), on the project's social media (Twitter, Facebook, Instagram), and on the personal social media of the researcher in charge. The collection was also advertised on the Suomi24 discussion channel in accordance with the channel's rules, and announcements were published in various patient and professional journals (Avain magazine, Propo magazine, IBD, Uutis-Urhot, Endorfiini). The collection was communicated by email to patient and professional organisations, which were asked to forward the information to their social media and email lists. In addition, posters and flyers were printed about the collection of nappy stories and posted in several health care facilities (e.g. clinics, health centres) in one city to be hung in waiting rooms, as well as in relevant units of 22 hospitals (e.g. outpatient departments of urology, physiatry, gynaecology).

Collection Mode

Self-administered writings and/or diaries: Web-based (Penna textual data collection tool)

Research Instrument

Data collection guidelines: Self-administered writings guide

Data Files

33 writings in txt format. Additionally, the data were organised into an easy to use HTML version and a CSV version.

Data File Language

The data files of this dataset are available in the following languages: Finnish.

Qualitative data are available in their original language only and are not translated.

Data Version

1.0

Completeness of Data and Restrictions

The data has been collected for academic and literary expression, so it has been left to the discretion of the authors to include personal data that may be necessary for further use, such as implicit identifiers of the author. During archiving, the archives removed personal names from two of the articles. In addition, implicit identifiers were removed from three articles at the request of the author. The anonymisations made by the FSD are indicated by [[double square brackets]].

A total of 37 responses were received to the writing call, all of which were submitted with the author's permission for archiving. During the archiving process, two blank responses, one double response and one response that had been completed by the respondent in a subsequent second response were deleted.

Citation Requirement

The data and its creators shall be cited in all publications and presentations for which the data have been used. The bibliographic citation may be in the form suggested by the archive or in the form required by the publication.

Bibliographical Citation

Vaittinen, Tiina (Tampere University): Experiences of Life with Adult Incontinence Pads 2020-2021 [dataset]. Version 1.0 (2022-11-30). Finnish Social Science Data Archive [distributor]. https://urn.fi/urn:nbn:fi:fsd:T-FSD3619

Deposit Requirement

Notify FSD of all publications where you have used the data by sending the citation information to user-services.fsd@tuni.fi.

Special Terms and Conditions for Access

The data may contain indirect identifiers. When publishing quotations from the data, users need to consider very carefully in each specific case what information needs to be removed or altered according to research ethical guidelines.

Disclaimer

The original data creators and the archive bear no responsibility for any results or interpretations arising from the reuse of the data.

FSD has not been informed of any publications related to the data.