Study title

Experiences of Being Talked Past in the Daily Lives of Disabled People 2023

Dataset ID Number

FSD3772

Persistent identifiers

https://urn.fi/urn:nbn:fi:fsd:T-FSD3772
https://doi.org/10.60686/t-fsd3772

Data Type

Qualitative

Authors

• Kakkonen, Tuomo (University of Eastern Finland)

Abstract

The dataset consists of self-administered written texts on the experiences people with disabilities have had with dismissive behaviour and being talked past in their everyday lives. The data was collected using FSD's Penna textual data collection tool.

The writing guidelines directed participants to write a free-form account of their experiences of dismissive behaviour and being talked past as a disabled person, for example, when service providers talk to a person who is assisting the disabled person instead of talking directly to the disabled person. Participants were also asked how they had reacted to such situations, how often they encountered this type of behaviour, and what they thought caused this type of behaviour.

Background information included the participant's gender, age group and type of municipality of residence. The data were organised into an easy to use HTML version at FSD.

The dataset is only available in Finnish.

Keywords

disabilities; disabled persons; everyday life; social assistance; social interaction; speech

Topic Classification

• Social sciences (Fields of Science Classification)
• Social behaviour and attitudes (CESSDA Topic Classification)
• Social conditions and indicators (CESSDA Topic Classification)

Series

Individual datasets

Distributor

Finnish Social Science Data Archive

Access

The dataset is (B) available for research, teaching and study.

Data Collector

• Kakkonen, Tuomo (University of Eastern Finland)

Collection Dates

2023-02-15 – 2023-04-16

Nation

Finland

Geographical Coverage

Finland

Analysis/Observation Unit Type

Individual

Universe

People aged over 18 who have a disability

Time Method

Cross-section

Sampling Procedure

Non-probability: Availability

The writing invitation was shared on the websites and social media channels of various disability organisations. In addition, the researcher shared the writing invitation on his own social media channel, on disability-related social media groups, on a channel for students at the University of Eastern Finland, and by leaving flyers in the lobby of a physiotherapy company.

Collection Mode

Self-administered writings and/or diaries: Web-based (Penna textual data collection tool)

Research Instrument

Data collection guidelines: Self-administered writings guide

Data Files

26 texts in ODT file format. Additionally, the data were organised into an easy to use HTML version and a CSV version.

Data File Language

The data files of this dataset are available in the following languages: Finnish.

Qualitative data are available in their original language only and are not translated.

Data Version

1.0

Completeness of Data and Restrictions

Information concerning the participants' exact ages, municipalities of residence, and the year when they had become disabled were removed from the data at FSD to protect the identities of the participants and the ensure consistency in the classification of background information. Changes made at FSD are marked with [square brackets].

Citation Requirement

The data and its creators shall be cited in all publications and presentations for which the data have been used. The bibliographic citation may be in the form suggested by the archive or in the form required by the publication.

Bibliographical Citation

Kakkonen, Tuomo (University of Eastern Finland): Experiences of Being Talked Past in the Daily Lives of Disabled People 2023 [dataset]. Data version 1.0 (2023-04-17). Finnish Social Science Data Archive [distributor]. DOI: https://doi.org/10.60686/t-fsd3772; URN: https://urn.fi/urn:nbn:fi:fsd:T-FSD3772

Deposit Requirement

Notify FSD of all publications where you have used the data by sending the citation information to user-services.fsd@tuni.fi.

Disclaimer

The original data creators and the archive bear no responsibility for any results or interpretations arising from the reuse of the data.

Related Publications

Laine, Teresa (2024). Vammaisten kokemuksia ohi puhumisesta. Näkökulmana psyko-emotionaalinen vammaistaminen. Sosiaalityön pro gradu -tutkielma. Itä-Suomen yliopisto. http://urn.fi/urn:nbn:fi:uef-20240390

Kakkonen, Tuomo (2024). ”Tajuan kyllä, puhu vain suoraan minulle” - Ohipuhumisen kokemukset vammaisten henkilöiden arjessa 2020-luvun Suomessa. Kulttuurintutkimuksen pro gradu -tutkielma. Itä-Suomen yliopisto.

Pohjola, Nina (2025) Ohipuhuminen vammaisten ihmisten elämässä. Kasvatustieteiden Pro gradu -tutkielma. Turun yliopisto. https://urn.fi/URN:NBN:fi-fe2025030315127