Study title

Quality of Life of the Mentally Disabled 1991: Mildly Disabled

Dataset ID Number

FSD2207

Persistent identifier

urn:nbn:fi:fsd:T-FSD2207

Data Type

Quantitative

Authors

• Autio, Tiina (Finnish Association on Intellectual and Developmental Disabilities. Research unit KOTU)
• Henriksson, Anja (Finnish Association on Intellectual and Developmental Disabilities. Research unit KOTU)
• Kivilä, Tiina (Finnish Association on Intellectual and Developmental Disabilities. Research unit KOTU)
• Matikka, Leena (Finnish Association on Intellectual and Developmental Disabilities. Research unit KOTU)
• Qvist, Anne (Finnish Association on Intellectual and Developmental Disabilities. Research unit KOTU)
• Rehumäki, Marjukka (Finnish Association on Intellectual and Developmental Disabilities. Research unit KOTU)
• Vesala, Hannu (Finnish Association on Intellectual and Developmental Disabilities. Research unit KOTU)
• Öhman, Anneli (Finnish Association on Intellectual and Developmental Disabilities. Research unit KOTU)

Abstract

The project on the quality of life of the mentally disabled was set in motion by the research unit of the Finnish Association on Intellectual and Developmental Disabilities in 1989. The data were collected by face-to-face interviews.

The quality of life of the mildly disabled was studied from several viewpoints. The mildly disabled responded to survey questions themselves, but background information was collected before the interviews. Interviewers assessed the interview situations and the reliability of the responses afterwards.

The respondents gave their opinions on housing, working life, and their financial circumstances. Their educational background was charted, as well as whether they needed help with housework. Several questions focused on leisure, social relationships, and individual psychological factors. Views on hobbies, friendships, relationships, and autonomy were explored. Finally, the respondents were asked how conscious they were of their disabilities, and how those disabilities affected their lives.

Background variables included the respondent's year of birth, mother tongue, Special Services District, parents' education and occupation, and the number of siblings. Relating to R's disability, questions about mobility, oral expression, and living in institutions were asked.

Keywords

activities of daily living; housing; intellectual impairment; interpersonal relations; leisure time; living conditions; mental health; mentally disabled persons; occupational life; quality of life; social networks; social services; social skills

Topic Classification

• Social sciences (Fields of Science Classification)
• Minorities (CESSDA Topic Classification)

Series

Individual datasets

Distributor

Finnish Social Science Data Archive

Access

The dataset is (B) available for research, teaching and study.

Data Collector

• Autio, Tiina (Finnish Association on Intellectual and Developmental Disabilities. Research unit KOTU)
• Henriksson, Anja (Finnish Association on Intellectual and Developmental Disabilities. Research unit KOTU)
• Kivilä, Tiina (Finnish Association on Intellectual and Developmental Disabilities. Research unit KOTU)
• Matikka, Leena (Finnish Association on Intellectual and Developmental Disabilities. Research unit KOTU)
• Qvist, Anne (Finnish Association on Intellectual and Developmental Disabilities. Research unit KOTU)
• Rehumäki, Marjukka (Finnish Association on Intellectual and Developmental Disabilities. Research unit KOTU)
• Vesala, Hannu (Finnish Association on Intellectual and Developmental Disabilities. Research unit KOTU)
• Öhman, Anneli (Finnish Association on Intellectual and Developmental Disabilities. Research unit KOTU)

Data Producers

• Finnish Association on Intellectual and Developmental Disabilities

Time Period Covered

1990 – 1991

Collection Dates

1990-06 – 1991-07

Nation

Finland

Geographical Coverage

Finland

Analysis/Observation Unit Type

Individual

Universe

Finnish mildly or moderately disabled persons aged 18 or over and living in Finland (excluding the Åland Islands)

Time Method

Cross-section

Sampling Procedure

Probability: Systematic random

Two samples, the base sample and the additional sample, were drawn for the survey on 30 September 1989. The base sample was a systematic cluster sample of special services units.

The respondents' units were collected from the 1988 catalogue of the Finnish Special Services Units. For the base sample, a starting point was randomly chosen from the catalogue covering the whole country in alphabetical order. From the starting point, every 40th unit was included. Because small nursing homes were poorly represented in the catalogue, the base sample had to be supplemented. Therefore, a catalogue covering small nursing homes was produced in co-operation with the Finnish Special Services Districts. The sample drawn from this catalogue, using the sampling interval of 20, was added to the base sample.

For the additional sample, lists according to Special Services Districts were compiled from the 1988 catalogue of the Finnish Special Services Units. From these lists, every 6th unit was included to form the additional sample.

The sample included 38 work units and 60 residential units. Because the sample was unit-specific, the number of persons included in the survey could not be accurately known in advance. Therefore, some reductions had to be made within the units. The aim was to select 5 to 10 persons living or working together from every unit. If there were several relevant groups within the unit, only one of them was included by a random selection. The whole project included 822 mentally disabled persons. Interviews were possible to conduct with 619 of them, but 162 could not be interviewed. In order to receive information on the life of every disabled person within the sample, the respondents were divided into two subgroups: mildly disabled and severely disabled. The mildly disabled group included those who could be interviewed. The severely disabled group had to be studied with the help of video observation, biographies, and questionnaires aimed at the support persons.

Collection Mode

Face-to-face interview

Research Instrument

Structured questionnaire

Data File Language

Downloaded data package may contain different language versions of the same files.

The data files of this dataset are available in the following languages: Finnish.

FSD translates quantitative data into English on request, free of charge. More information on ordering data translation.

Data Version

2.0

Related Datasets

FSD2208 Quality of Life of the Mentally Disabled 1991: Severely Disabled

Completeness of Data and Restrictions

The data do not include variables k13, k121, k191, and k221. The variables indicating the address of the hall of residence (k4) and the name and address of the employer (k5) have been removed from the data because of data protection issues.

Weighting

There are no weight variables in the data.

Citation Requirement

The data and its creators shall be cited in all publications and presentations for which the data have been used. The bibliographic citation may be in the form suggested by the archive or in the form required by the publication.

Bibliographical Citation

Autio, Tiina (Finnish Association on Intellectual and Developmental Disabilities) & Henriksson, Anja (Finnish Association on Intellectual and Developmental Disabilities) & Kivilä, Tiina (Finnish Association on Intellectual and Developmental Disabilities) & Matikka, Leena (Finnish Association on Intellectual and Developmental Disabilities) & Qvist, Anne (Finnish Association on Intellectual and Developmental Disabilities) & Rehumäki, Marjukka (Finnish Association on Intellectual and Developmental Disabilities) & Vesala, Hannu (Finnish Association on Intellectual and Developmental Disabilities) & Öhman, Anneli (Finnish Association on Intellectual and Developmental Disabilities): Quality of Life of the Mentally Disabled 1991: Mildly Disabled [dataset]. Version 2.0 (2018-07-23). Finnish Social Science Data Archive [distributor]. https://urn.fi/urn:nbn:fi:fsd:T-FSD2207

Deposit Requirement

Notify FSD of all publications where you have used the data by sending the citation information to user-services.fsd@tuni.fi.

Disclaimer

The original data creators and the archive bear no responsibility for any results or interpretations arising from the reuse of the data.

Related Publications

Tahdon elää itse: ryhmäkeskusteluja kehitysvammaisten elämänlaadusta / suunn. Anneli Öhman; kuvaus Reijo Meronen. Kehitysvammaliitto, 1990. Videotallenne.

Työ on tärkeää: ryhmäkeskusteluja kehitysvammaisten elämänlaadusta / suunn. Anneli Öhman; kuvaus Reijo Meronen. Kehitysvammaliitto, 1996. Videotallenne.

Elämänlaadun kysymyksiä: kehitysvammaisten elämänlaatu -projektin haastattelu- ja kyselylomakkeet (1993). Toim. Matikka, Leena.Valtakunnallisen tutkimus- ja kokeiluyksikön monisteita; 8.

Ainakin puolet onnellinen (1991). Filminova. Kehitysvammaliitto, 1991. Videotallenne.

Öhman, Anneli (1991). Elämänlaatua etsimässä: ryhmäkeskustelumenetelmän kokeilu [kehitysvammaisten elämänlaatu -projektin osaraportti]. Valtakunnallisen tutkimus- ja kokeiluyksikön julkaisuja; 57.

Öhman, Anneli (1992). Ystävät, naapurit ja sukulaiset: suhteita ja mahdollisuuksia. Kehitysvammaliiton julkaisuja; 13.

Vesala, Hannu & Rehumäki, Marjukka & Saari, Tiina (1993). Kehitysvammaisten asuminen ja elämänlaatu. Kehitysvammaliiton julkaisuja; 18/1993.

Vesala, Hannu (1992). Kehitysvammaisten harrastaminen. Valtakunnallisen tutkimus- ja kokeiluyksikön monisteita; 6.

Vesala, Hannu (1993). Kehitysvammaisten asuminen ja harrastukset Uudellamaalla. Valtakunnallisen tutkimus- ja kokeiluyksikön monisteita; 15.

Matikka, Leena M. & Vesala, Hannu T. (1997). Acquiescence in quality-of-life interviews with adults who have mental retardation. Mental Retardation 35(2), 75-82.

Matikka, Leena (1991). Service-oriented assessment of quality of life of adults with intellectual disabilities. FAMR Research Publications; 83. Helsinki: Finnish Association of Mental Retardation.

Matikka, Leena (1993). Elämänlaatutietoa Etelä- ja Keski-Pohjanmaalta: kehitysvammaisten haastatteluvastauksia taulukoina. Valtakunnallisen tutkimus- ja kokeiluyksikön monisteita; 12.

Matikka, Leena (1993). Elämänlaatutietoa Keski-Suomesta: kehitysvammaisten haastatteluvastauksia taulukoina. Valtakunnallisen tutkimus- ja kokeiluyksikön monisteita; 14.

Matikka, Leena (1993). Elämänlaatutietoa Lapista: kehitysvammaisten haastatteluvastauksia taulukoina. Valtakunnallisen tutkimus- ja kokeiluyksikön monisteita; 13.

Matikka, Leena (1993). Elämänlaatutietoa Pirkanmaalta: kehitysvammaisten haastatteluvastauksia taulukoina. Valtakunnallisen tutkimus- ja kokeiluyksikön monisteita; 11.

Matikka, Leena (1993). Elämänlaatutietoa Uudeltamaalta: kehitysvammaisten haastatteluvastauksia taulukoina. Valtakunnallisen tutkimus- ja kokeiluyksikön monisteita; 9.

Matikka, Leena (1993). Elämänlaatutietoa Varsinais-Suomesta: kehitysvammaisten haastatteluvastauksia taulukoina. Valtakunnallisen tutkimus- ja kokeiluyksikön monisteita; 10.

Matikka, Leena (1994). The quality of life of adults with developmental disabilities in Finland. In: Quality of life for persons with disabilities: international perspectives and issues (ed. David Goode), 22-38. Cambridge: Brookline Books.

Matikka, Leena (1996). Effects of psychological factors on the perceived quality of life of people with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities 9, 115-128.

Matikka, Leena (2000). Comparability of quality-of-life studies of the general population and people with intellectual disabilities. Scandinavian Journal of Disability Research 2(1), 83-102.

Matikka, Leena (2001). Service-oriented assessment of quality of life of adults with intellectual disabilities. Electronic dissertation. Acta Electronica Universitas Tamperensis 128. Doctoral dissertation, University of Tampere, Tampere.

Matikka, Leena (1999). Kehitysvammaisten ja muun väestön elämänlaadun vertailu lama-Suomessa. Teoksessa: Kehitysvammatutkimusta 1997: artikkeleita 3. kehitysvammatutkimuksen konferenssista (toim. Hannu Vesala), 60-74. Valtakunnallisen tutkimus- ja kokeiluyksikön julkaisuja; 78.

Kivilä, Tiina (1994). Näin minä asun: itsenäisyys, päätösmahdollisuudet sekä sosiaalinen vuorovaikutus eri asumismuodoissa. Pro gradu -tutkielma: Jyväskylän yliopisto, Erityispedagogiikan laitos.

Henriksson, Anja (1991). Kehitysvammaiset elämänlaatutyöryhmässä: kehitysvammaisten aikuisten elämänlaatutyöryhmän työskentelyn kuvailua ja arviointia. Aikuiskoulutuksen syventävien opintojen tutkielma: Helsingin yliopisto, Kasvatustieteen laitos (lyhennelmä julkaistu Kehitysvammaliiton julkaisuja 4/1992).

Autio, Tiina & Öhman, Anneli (1995). Ystävyys, rakkaus ja elämänlaatu: kehitysvammaisten elämänlaatu -projekti. Helsinki: Kehitysvammaliitto. Selkokirja.

Autio, Tiina (1991). Kehitysvammaisten elämänlaatutietoa: haastatteluvaiheen tuloksia taulukoina. Helsinki: Kehitysvammaliitto. Kehitysvammaliiton julkaisuja; 2.

Autio, Tiina (1992). Kehitysvammaisten näkemyksiä parisuhteesta ja seksuaalisuudesta. Helsinki: Kehitysvammaliitto. Kehitysvammaliiton julkaisuja; 12.

Autio, Tiina (1992). Quality of life of mentally retarded: interviewing results in tabular form. Helsinki: The Finnish Association on Mental Retardation. The Finnish Association on Mental Retardation Publications; 11.

Autio, Tiina (1993). Työ kehitysvammaisen elämässä. Helsinki: Kehitysvammaliitto. Kehitysvammaliiton julkaisuja; 15.

Autio, Tiina (1993). Vaikutusmahdollisuudet ja elämänlaatu: kehitysvammaisten kokemuksia itsemääräämisestä. Helsinki: Kehitysvammaliitto. Kehitysvammaliiton julkaisuja; 16.