Study title

Life Stories of Adults with Cerebral Palsy 2008

Dataset ID Number

FSD2594

Persistent identifier

urn:nbn:fi:fsd:T-FSD2594

Data Type

Qualitative

Authors

• Airaksinen, Tiina (Finnish Association of People with Physical Disabilities. Rehabilitation Unit/CP project)

Abstract

The data consist of 20 life stories written by Finnish adults with cerebral palsy in 2008. The stories were collected for the project "Well-being and rehabilitation during the life-cycle of adults with CP" conducted by the Finnish Association of People with Physical Disabilities (FPD). The aim was to study what it had been like to live as an adult with CP in different time periods in Finland. The writers were from different age groups. They were instructed to write about their life events and experiences, everyday life, and about people and things that had most affected their lives.

The dataset is only available in Finnish.

Keywords

cerebral palsy; disabled persons; everyday life; identity; life events; life histories

Topic Classification

• Social sciences (Fields of Science Classification)
• Specific diseases, disorders and medical conditions (CESSDA Topic Classification)
• General health and well-being (CESSDA Topic Classification)
• Social behaviour and attitudes (CESSDA Topic Classification)
• Specific social services: use and availability (CESSDA Topic Classification)

Series

Individual datasets

Distributor

Finnish Social Science Data Archive

Access

The dataset is (B) available for research, teaching and study.

Data Collector

• Airaksinen, Tiina (Finnish Association of People with Physical Disabilities. Rehabilitation Unit/CP project)

Data Producers

• Finnish Association of People with Physical Disabilities
• Finland's Slot Machine Association

Collection Dates

2008-05 – 2008-08

Nation

Finland

Geographical Coverage

Finland

Analysis/Observation Unit Type

Individual

Universe

Finnish adults with cerebral palsy

Time Method

Cross-section

Sampling Procedure

Non-probability: Availability

The study was advertised in two magazines and 60 people with cerebral palsy contacted the researcher. All of them were sent an invitation to write life stories and in the end 20 people delivered their stories.

Collection Mode

Self-administered writings and/or diaries: E-mail

Self-administered writings and/or diaries: Paper

Research Instrument

Data collection guidelines: Self-administered writings guide

Data Files

Data: 20 texts in Finnish.

Data File Language

The data files of this dataset are available in the following languages: Finnish.

Qualitative data are available in their original language only and are not translated.

Data Version

1.0

Related Datasets

FSD2605 Well-being of Adults with Cerebral Palsy 2008-2010

Citation Requirement

The data and its creators shall be cited in all publications and presentations for which the data have been used. The bibliographic citation may be in the form suggested by the archive or in the form required by the publication.

Bibliographical Citation

Airaksinen, Tiina (Finnish Association of People with Physical Disabilities): Life Stories of Adults with Cerebral Palsy 2008 [dataset]. Version 1.0 (2011-01-11). Finnish Social Science Data Archive [distributor]. https://urn.fi/urn:nbn:fi:fsd:T-FSD2594

Deposit Requirement

Notify FSD of all publications where you have used the data by sending the citation information to user-services.fsd@tuni.fi.

Disclaimer

The original data creators and the archive bear no responsibility for any results or interpretations arising from the reuse of the data.

Related Materials

CP-portaali WWW-sivut. http://www.cp-portaali.fi/ [viitattu: 7.2.2011].

Related Publications

Sisua ja elämänsävyjä: Tositarinoita CP-vammaisten aikuisten elämästä (2010). Toim. Airaksinen, Tiina & Nurmilaakso, Sanna. Tampere: Mediapinta Oy.

Savilahti, Sanna (2009). "Sisulla ja sydämellä vaikka läpi harmaan kiven." Tarinoita siitä, miten vammaiset ihmiset kertovat sosiaalisten verkostojensa merkityksestä elämänkululleen. Tampere: Tampereen yliopisto. Sosiaalityön pro gradu -tutkielma.

Toivonen, Kirsti (2015). Onnellisuuden kokeminen CP-vammaisten aikuisten elämässä. Kokkola: Jyväskylän yliopisto. Kokkolan yliopistokeskus Chydenius. Sosiaalityön kandidaatintutkielma.

Ala-Hynnilä, Henna (2016). Kuka minä olen? Narratiivinen näkökulma identiteetin rakentumiseen CP-vammaisten aikuisten kertomuksissa. Turku: Turun yliopisto. Folkloristiikan pro gradu -tutkielma.

Lehtinen, Solja (2016). Rajankäyntiä. Tulkintoja CP-vammaisten naisten omaelämäkerroista. Turku: Turun yliopisto. Kasvatustieteiden laitos. Erityispedagogiikan sivuaineopintojen proseminaarityö.

Lehtinen, Solja (2019). Valoja pimeydessä - tulkintoja CP-vammaisten omaelämäkerroista. Kasvatustiede, erityispedagogiikan pro gradu -tutkielma, Turun yliopisto.

Järvinen, S. (2015, July). From Shame to Pride-Empowerment of People with Cerebral Palsy. In INTERNATIONAL ACADEMIC CONFERENCE ON SOCIAL SCIENCES (p. 65).

Padatsu, Jaakko(2020) Kohti oman näköistä elämää : kulttuuriset symbolit CP-vammaisten elämäntarinoissa. Sosiaalityön pro gradu -tutkielma. Humanistis-yhteiskuntatieteellinen tiedekunta, Jyväskylän yliopisto. http://urn.fi/URN:NBN:fi:jyu-202103041855

Huhtala, Inga (2021). Voimavarat ja selviytymiskeinot CP-vammaisten aikuisten elämäntarinoissa. Tampere: Tampereen yliopisto. Sosiaalityön pro gradu -tutkielma.URN:NBN:fi:tuni-202104273773