Study title

Cancer Patients' Experiences of Psychosocial Support 2024

Dataset ID Number

FSD3903

Persistent identifiers

https://urn.fi/urn:nbn:fi:fsd:T-FSD3903
https://doi.org/10.60686/t-fsd3903

Data Type

Qualitative

Authors

• Vuolle, Terhi (University of Jyväskylä)

Abstract

The data consists of writings in which cancer patients and cancer survivors write about their experiences of psychosocial support. The data was originally collected for a Master's thesis on the experiences and needs of cancer survivors for psychosocial support.

The writing invitation aimed to collect experiences related to cancer, rehabilitation, psychosocial support received, and support needs and expectations. The writing invitation provided a number of supporting questions which the respondent could use to assist in the writing process. These questions asked the respondent to describe, among other things, his/her perception of psychosocial support and its impact on his/her life at different stages of his/her life. The respondent was also given the opportunity to write about what kind of support has been important to them at different stages of their illness, how it has affected them and from whom they have received support. The respondent was also asked to write about, for example, what factors have been barriers or challenges in seeking support.

The background information includes gender and age group. The data were organised into an easy to use HTML version at FSD.

Keywords

cancer; diseases; medical history; rehabilitation (medical)

Topic Classification

• Social sciences (Fields of Science Classification)
• Specific diseases, disorders and medical conditions (CESSDA Topic Classification)
• Medication and treatment (CESSDA Topic Classification)

Series

Individual datasets

Distributor

Finnish Social Science Data Archive

Access

The dataset is (C) available only for research including master's theses.

Data Collector

• Vuolle, Terhi (University of Jyväskylä)

Collection Dates

2024-06-05 – 2024-08-15

Nation

Finland

Geographical Coverage

Finland

Analysis/Observation Unit Type

Individual

Universe

People who have or have had cancer

Time Method

Cross-section

Sampling Procedure

Non-probability: Availability

The writing invitation was shared in cooperation with the Cancer Association Pirkanmaa on their website and social media accounts (Facebook and Instagram). In addition, the Association of Cancer Patients in Finland, Cancer Society of Finland, Europan Donna Finland ry, the Finnish Colorectal Cancer Association (Colores), the Southern Finland Cancer Association and Siskola, among others, have published the writing invitation on their social media pages.

Collection Mode

Self-administered writings and/or diaries: Web-based (Penna textual data collection tool)

Research Instrument

Data collection guidelines: Self-administered writings guide

Data Files

15 writings in txt format. Additionally, the data were organised into an easy to use HTML version and a CSV version.

Data File Language

The data files of this dataset are available in the following languages: Finnish.

Qualitative data are available in their original language only and are not translated.

Data Version

1.0

Completeness of Data and Restrictions

For example, names, places of residence and Facebook group names were removed from the archived writings.

16 responses were received to the writing call, and 15 of them were submitted with the author's permission for archiving.

Citation Requirement

The data and its creators shall be cited in all publications and presentations for which the data have been used. The bibliographic citation may be in the form suggested by the archive or in the form required by the publication.

Bibliographical Citation

Vuolle, Terhi (University of Jyväskylä): Cancer Patients' Experiences of Psychosocial Support 2024 [dataset]. Data version 1.0 (2024-11-12). Finnish Social Science Data Archive [distributor]. DOI: https://doi.org/10.60686/t-fsd3903; URN: https://urn.fi/urn:nbn:fi:fsd:T-FSD3903

Deposit Requirement

Notify FSD of all publications where you have used the data by sending the citation information to user-services.fsd@tuni.fi.

Disclaimer

The original data creators and the archive bear no responsibility for any results or interpretations arising from the reuse of the data.

Related Publications

Vuolle, Terhi (2024) ”Mitä onkaan psykososiaalinen tuki?” : fenomenologis-hermeneuttinen tutkimus syöpään sairastuneiden psykososiaalisen tuen kokemuksista. Sosiaalityön pro gradu -tutkielma, Jyväskylän yliopisto.