Aineiston nimi

Support Networks of Families with Special Needs Children 2014

Aineistonumero

FSD3066

Pysyvät tunnisteet

https://urn.fi/urn:nbn:fi:fsd:T-FSD3066
https://doi.org/10.60686/t-fsd3066

Aineiston laatu

Kvalitatiivinen aineisto

Tekijät

• Nystedt, Ursula (University of Jyväskylä)

Sisällön kuvaus

The data consist of interviews of families whose children had been diagnosed with a developmental disability or some other long-term illness. The interviews charted the support received by the families from health and social services, educational services, third sector, and peers and relatives. The interviews were informal and the interviewees talked about, for instance, parenthood, coping, and everyday life of families with special needs children.

The dataset is only available in Finnish.

Asiasanat

disabilities; disabled children; family life; parental role; parents; social services; social support; special needs education

Tieteenala/Aihealue

• Social sciences (OKM:n tieteenalaluokitus)
• Specific diseases, disorders and medical conditions (CESSDAn aihepiiriluokitus)
• Children (CESSDAn aihepiiriluokitus)
• Specific social services: use and availability (CESSDAn aihepiiriluokitus)

Sarja

Individual datasets

Jakelija

Finnish Social Science Data Archive

Käyttöoikeudet

The dataset is (C) available only for research including master's theses.

Kerääjät

• Nystedt, Ursula (University of Jyväskylä)

Aineistonkeruun ajankohta

2013 – 2013

Maa

Finland

Kohdealue

Finland

Havainto/aineistoyksikkötyyppi

Individual

Family

Event/Process/Activity

Perusjoukko/otos

Parents of children with disabilities

Tutkimuksen aikaulottuvuus

Cross-section

Havainto/aineistoyksiköiden valinta

Non-probability: Purposive

The researcher knew one of the families she interviewed and the rest of the participants were discovered through the first family (snowball sampling). Two of the interviews were conducted in the homes of the interviewees, one at the workplace of the interviewees, and one at the researcher's home. One of the interviews was conducted in English, while the rest were conducted in Finnish.

Aineistonkeruun tekniikka

Face-to-face interview

Keruuväline tai –ohje

Interview scheme and/or themes

Aineiston määrä

The data contain 4 interviews in ODT and HTML file format. There are approximately 110 pages of interview material.

Datatiedostojen kieli

Aineisto sisältää datatiedostoja seuraavilla kielillä: englanti ja suomi.

Kvalitatiiviset aineistot ovat saatavilla vain alkuperäiskielellä, niitä ei käännetä.

Datan versio

1.0

Aineiston käytössä huomioitavaa

References to names and other direct identifiers as well as indirect identifiers referring to third persons and sensitive content were removed from the data during archiving. Names of third persons have been removed or, if occurring more than once, pseudonymised. Changes made to the data at the Data Archive are indicated by [[double square brackets]].

Viittausvaatimus

The data and its creators shall be cited in all publications and presentations for which the data have been used. The bibliographic citation may be in the form suggested by the archive or in the form required by the publication.

Malliviittaus

Nystedt, Ursula (University of Jyväskylä): Support Networks of Families with Special Needs Children 2014 [dataset]. Version 1.0 (2015-12-18). Finnish Social Science Data Archive [distributor]. https://urn.fi/urn:nbn:fi:fsd:T-FSD3066

Julkaisusta tiedottaminen

Notify FSD of all publications where you have used the data by sending the citation information to user-services.fsd@tuni.fi.

Varaumat

The original data creators and the archive bear no responsibility for any results or interpretations arising from the reuse of the data.

Käytön ja kuvailun oheismateriaalit

Nystedt, Ursula (2015). Kestääkö verkko? Sairaan tai vammaisen lapsen perheen tukiverkoston muodostuminen. Jyväskylä: Jyväskylän yliopisto. Erityispedagogiikan pro gradu -tutkielma. URN:NBN:fi:jyu-201505121822

Julkaisut aineistosta

Nystedt, Ursula (2015). Kestääkö verkko? Sairaan tai vammaisen lapsen perheen tukiverkoston muodostuminen. Jyväskylä: Jyväskylän yliopisto. Erityispedagogiikan pro gradu -tutkielma. URN:NBN:fi:jyu-201505121822

Niemi, Sini 2022: Erityislasten vanhempien kertomuksia vanhemmuuden haasteista. Pro-gradu tutkielma, Lapin yliopisto. https://urn.fi/URN:NBN:fi-fe2022050332473

Tarvainen, Merja (2024). The sense of difference: Disability and loneliness as emotional and social isolation. In Hisayo Katsui & Matti Laitinen (Eds.) Disability, Happiness and the Welfare State: Finland and the Nordic Model. Abingdon, Oxon; New York, NY: Routledge, 12-27.