Aineiston nimi

Experiences of People with Fatigue Syndrome in Applying for Social Security Benefits 2024

Aineistonumero

FSD3857

Pysyvät tunnisteet

https://urn.fi/urn:nbn:fi:fsd:T-FSD3857
https://doi.org/10.60686/t-fsd3857

Aineiston laatu

Kvalitatiivinen aineisto

Tekijät

• Aaltonen, Heini (University of Helsinki)

Sisällön kuvaus

The data consists of writings in which people with fatigue syndrome talk about their experiences of applying for social security benefits. The data was originally collected for a Master's thesis in social work.

In the writing call, people with ME/CFS were asked to write about their experiences of applying for social security benefits if they had had difficulties in getting the benefit they had applied for or had been refused it. The call for contributions included a number of questions to help with the writing process. These provided the opportunity to describe, for example, how the difficulty or refusal of benefit has affected the respondent's life and well-being, the emotions that the situation has caused, or the support and help that the respondent has received from different sources in applying for benefit.

As background information, respondents were asked about their main source of income, the duration and severity of their illness, and whether they had a diagnosis of fatigue syndrome. The data were organised into an easy to use HTML version at FSD.

Asiasanat

diseases; fatigue (Physiology); medical diagnosis; social security

Tieteenala/Aihealue

• Social sciences (OKM:n tieteenalaluokitus)
• Specific diseases, disorders and medical conditions (CESSDAn aihepiiriluokitus)
• Medication and treatment (CESSDAn aihepiiriluokitus)

Sarja

Individual datasets

Jakelija

Finnish Social Science Data Archive

Käyttöoikeudet

The dataset is (B) available for research, teaching and study.

Kerääjät

• Aaltonen, Heini (University of Helsinki)

Aineistonkeruun ajankohta

2024-01-19 – 2024-02-19

Maa

Finland

Kohdealue

Finland

Havainto/aineistoyksikkötyyppi

Individual

Perusjoukko/otos

People with fatigue syndrome who have claimed social security benefits for their illness.

Tutkimuksen aikaulottuvuus

Cross-section

Havainto/aineistoyksiköiden valinta

Non-probability: Availability

Aineistonkeruun tekniikka

Self-administered writings and/or diaries: Web-based (Penna textual data collection tool)

Keruuväline tai –ohje

Data collection guidelines: Self-administered writings guide

Aineiston määrä

31 writings in txt format. Additionally, the data were organised into an easy to use HTML version and a CSV version.

Datatiedostojen kieli

Aineisto sisältää datatiedostoja seuraavilla kielillä: suomi.

Kvalitatiiviset aineistot ovat saatavilla vain alkuperäiskielellä, niitä ei käännetä.

Datan versio

1.0

Aineiston käytössä huomioitavaa

At the end of one response, long sections of text were removed because the contained text had been previously published on the respondent's blog. In addition, four writings were deleted completely because they contained only text previously published on the respondent's blog.

A total of 39 responses were received to the survey, of which the author's permission to archive 36 was obtained. One writing was removed from the archived data, as the author forbidded to quote the text.

Viittausvaatimus

The data and its creators shall be cited in all publications and presentations for which the data have been used. The bibliographic citation may be in the form suggested by the archive or in the form required by the publication.

Malliviittaus

Aaltonen, Heini (University of Helsinki): Experiences of People with Fatigue Syndrome in Applying for Social Security Benefits 2024 [dataset]. Version 1.0 (2024-09-12). Finnish Social Science Data Archive [distributor]. https://urn.fi/urn:nbn:fi:fsd:T-FSD3857

Julkaisusta tiedottaminen

Notify FSD of all publications where you have used the data by sending the citation information to user-services.fsd@tuni.fi.

Varaumat

The original data creators and the archive bear no responsibility for any results or interpretations arising from the reuse of the data.

Tietoarkiston tiedossa ei ole julkaisuja, joissa aineistoa olisi käytetty.