Aineiston nimi

Writings of People with Polycystic Ovary Syndrome (PCOS) 2025

Aineistonumero

FSD4042

Pysyvät tunnisteet

https://urn.fi/urn:nbn:fi:fsd:T-FSD4042
https://doi.org/10.60686/t-fsd4042

Aineiston laatu

Kvalitatiivinen aineisto

Tekijät

• Koskela, Riikka (University of Turku)

Sisällön kuvaus

The data consists of writings in which the respondents describe their experiences related to polycystic ovary syndrome (PCOS). The data was originally collected for a master's thesis that examined the experiences of women living with PCOS regarding the stigma associated with womanhood.

The invitation to write asked participants to share their personal experiences related to the condition and to reflect on the situations in which they had experienced stigma directed at women due to their PCOS symptoms. Respondents were also asked to consider what had caused the stigma in that particular situation, how they reacted to it, and how they would have liked others to react. People were welcome to respond even if they did not have a PCOS diagnosis or if their gender identity was other than female. The call for submissions also provided some guiding questions to assist with the responses.

As background information, respondents were asked about their age, gender, and whether they knew they had PCOS in the situation described in the writing.

Asiasanat

diseases; femininity; gynaecology; medical care; patients; women; women's health

Tieteenala/Aihealue

• Social sciences (OKM:n tieteenalaluokitus)
• Specific diseases, disorders and medical conditions (CESSDAn aihepiiriluokitus)
• Reproductive health (CESSDAn aihepiiriluokitus)

Sarja

Individual datasets

Jakelija

Finnish Social Science Data Archive

Käyttöoikeudet

The dataset is (B) available for research, teaching and study.

Kerääjät

• Koskela, Riikka (University of Turku)

Aineistonkeruun ajankohta

2025-10-27 – 2025-11-30

Maa

Finland

Kohdealue

Finland

Havainto/aineistoyksikkötyyppi

Individual

Perusjoukko/otos

People with experience of polycystic ovary syndrome (PCOS)

Tutkimuksen aikaulottuvuus

Cross-section

Havainto/aineistoyksiköiden valinta

Non-probability: Availability

Aineistonkeruun tekniikka

Self-administered writings and/or diaries: Web-based (Penna textual data collection tool)

Keruuväline tai –ohje

Data collection guidelines: Self-administered writings guide

Aineiston määrä

37 writings in txt format. Additionally, the data were organised into an easy to use HTML version and a CSV version.

Datatiedostojen kieli

Aineisto sisältää datatiedostoja seuraavilla kielillä: suomi.

Kvalitatiiviset aineistot ovat saatavilla vain alkuperäiskielellä, niitä ei käännetä.

Datan versio

1.0

Aineiston käytössä huomioitavaa

In FSD, information about place of residence was removed from the archived writings.

A total of 39 writings were collected, of which 37 were approved by the authors for archiving.

Viittausvaatimus

The data and its creators shall be cited in all publications and presentations for which the data have been used. The bibliographic citation may be in the form suggested by the archive or in the form required by the publication.

Malliviittaus

Koskela, Riikka (University of Turku): Writings of People with Polycystic Ovary Syndrome (PCOS) 2025 [dataset]. Data version 1.0 (2026-02-11). Finnish Social Science Data Archive [distributor]. DOI: https://doi.org/10.60686/t-fsd4042; URN: https://urn.fi/urn:nbn:fi:fsd:T-FSD4042

Julkaisusta tiedottaminen

Notify FSD of all publications where you have used the data by sending the citation information to user-services.fsd@tuni.fi.

Varaumat

The original data creators and the archive bear no responsibility for any results or interpretations arising from the reuse of the data.

Julkaisut aineistosta

Koskela, Riikka (2025) ”En sovi siihen kuvaan naisesta, jota yhteiskunta odottaa” : Mikrotunnustuksellinen analyysi munasarjojen monirakkulaoireyhtymää sairastavien stigmakokemuksista. Sosiologian pro gradu -tutkielma, Turun yliopisto.